Monday 2 April 2012

WHY I HATE AUTISM

    Yesterday was Autism Awareness Day. It's great that they have a day where people can educate others on autism. It can be easy to pidgeon-hole kids with autism as "bad kids" or "troubled kids"... but the problem is the Autism, not the kid.

     I have several friends whose children have Autism, and adult friends with Autism. Two of them have other problems, such as Severe Intellectual Disability and Isodicentric 15 Syndrome. Some just have plain old Autism, or High Functioning Autism, or Aspergers Syndrome.

     Every day I see or hear of things that the kids with Autism are doing.... hitting out of frustrating, biting out of frustration, head-banging, yelling and screaming, and basically freaking out.

I hate Autism.
Autism affects not only the person with Autism, but their parents and friends and family.
Autism stresses the kid out.... they are angry and hostile and often don't know why.
Autism causes stress to the parents - the mum can feel helpless, and alone.

     Autism sucks. Autism is an asshole. Autism needs to fuck off.
Anyone who doesn't know much about Autism should read up on it. Read the blogs from parents of kids with Autism. Most parents of kids with Autism are strong people - they need to be to help their kids survive in a world they don't always understand. 
Most parents try to stay happy and cheerful, even whilst their child is in the middle of a meltdown.  The alternative is to lose your shit and get angry or upset - which doesn't help them or their kid.

      There should be so much more support for kids with Autism, but there's not. There is a HUGE lack of help. When the child has a meltdown, it is up to the parents to handle it with almost no support. Friends can only do so much - sometimes just the prescence of another person can set the child off into an even worse meltdown.

One of the most common misconception about an autistic meltdown is that it is a common, everyday temper tantrum.  The parent or caregiver is often scorned by members of the public as being unable to control the individual.  It is important to point out that while the physical aggressions associated with autistic escalation and meltdown appears similar to a temper tantrum, the two events are completely different. 

 (borrowed from http://www.autismems.net/57801/82012.html)

I encourage anyone who doesn't know much about Autism to read up on it. Life for parents of kids with Autism sucks. There are awesome days where you are so proud of your kids and how far they've come. Then there's regression when they go majorly backward. Then there's the moving forward again and gaining so much more. Watching your kid play happily and make a friend. Watching them calmly engaging in an activity.

     Life with autism is a rollercoaster. Up, down, up, down - and without proper support, it's worse than it has to be.

If you know someone who has autism, or a parent with a child with autism, SHOW THEM SUPPORT.
Be there for them to talk to, a shoulder to cry on, someone to cheer them up when they need it. Even if you can't always be there in person (whether you're unable or it's going to make things escalate), be there in emotion and support.


    

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